Priscilla is a 56-year-old woman from Washington, DC, with visual disabilities and albinism, who works for the DC government. When the existing magnifying screen and reader she received through her job was old and did not work reliably, she sought other options to help her get equipment that would make her job easier. The Eric Fund purchased a brand new magnifying screen for Priscilla that will enlarge her computer as well as be able to scan and enlarge papers and other hardcopy media for easy viewing. Priscilla was thrilled to receive her new magnifying screen, and is happy that the device is hers to use at work or at home.

Marccelo is a 14-year-old boy from Springfield, VA, who misses playing video games and connecting with friends online. Marccelo suddenly began to lose function in his hands, arms and legs and now uses a wheelchair. His therapist recommended “life changing” assistive technology that would help Marccelo use a phone and computer to participate with friends socially and via video games. While a private donor purchased an adaptive Xbox controller for him, Marccelo’s existing Xbox is old and does not support new adaptive devices. The Eric Fund is purchasing an adaptive joystick controller and new Xbox to help Marccelo once again play video games with his friends. The Eric Fund is also providing a switch, iPad and case. “He is going to be so excited,” said his mom, Guissela. “Thank you so much to The Eric Fund for getting this equipment for Marccelo. We can’t thank you enough.”

Karina is a vivacious 20-year-old woman with cerebral palsy from Springfield, VA. Karina uses a manual wheelchair, but struggled to operate it optimally around her high school campus and in the community. With an electric wheelchair out of her family’s financial reach, Karina’s therapists at her high school tested a device that would convert her manual wheelchair into a power chair when needed, enabling her to navigate her world at a pace that matches her energetic personality. The Eric Fund is honored to purchase a SmartDrive device for Karina, which will help power her wheelchair and her dreams, as she gets ready to embark on a new chapter in her life.

Stephanie is an active, 41-year-old woman from Springfield, VA, who is part of the Undiagnosed Disease Network at the National Institutes of Health. It has been difficult for Stephanie to get funding for a wheelchair since she doesn’t have an official diagnosis. She has a neuromuscular condition that reduces her stamina, making it necessary to use a wheelchair when out of the house. She requested a Fold & Go electric wheelchair that is heavy duty and good for outdoor activities. Stephanie enjoys being outside and exploring new things. On her first official outing with her new equipment, she used the chair to go to Great Falls, Virginia. She said the gravel paths were bumpy, but she was able to navigate them well, especially with the help of the self-propel feature. Stephanie plans to have more exciting adventures with her new wheelchair.

Joshua is a 19-year-old young man with intellectual disabilities from Washington, DC, who works hard and chases his dreams. Once told he would never read or write, Joshua is a high school honors student and a member of his school’s distinguished Core Leader Team, working with parents, students and teachers. The Eric Fund is purchasing an iPad mini for Joshua so he can use a special reading app that will help him read books and notes as well as record some of his classes for note taking. The iPad will help Joshua continue to excel at school at beyond.

Derricke is and active 8-year-old boy from Woodbridge, VA, with spinal muscular atrophy. His condition causes weak muscles, making it a challenge to move independently and requires use of a wheelchair. Derricke wants to be able to ride a bicycle in the neighborhood like his brothers and friends. He was evaluated for an adaptive tricycle and it was recommended not only for his social involvement, but also to build his muscles, stamina, endurance and mobility. The bicycle is not covered by insurance, so The Eric Fund was honored to purchase one for Derricke.

Derricke’s mother said that means the world to her that her son has a bike of his own, allowing him to go outside and play with other children. He loved using the bike at physical therapy and he was thrilled when he found out he was getting one of his own to use at home.

Anjie is 55 years old and has had polio since birth, but did not know she was entitled to assistance, therapy and other services until she was 28 years old. The delay in receiving assistance caused her condition to worsen, making it painful to walk. She requested a power mobility scooter to get out and about more and have more interaction in her Washington, DC community. Now Anjie can run errands and attend things she normally would not have been able to do.

Jacob is a 5-year-old boy from Rockville, MD, who has a genetic condition that causes benign tumors to grow throughout his major organs and for Jacob, most notably in the brain. The benign brain tumors have caused epilepsy and developmental delays including speech delays as his greatest challenge. Jacob uses an assistive device at school that has provided him some level of independence communicating and advocating for himself. The Eric Fund is pleased to award Jacob an iPad with applications that can be customized for his specific needs and that can be with him at home and when he transitions from school to camp to kindergarten. His mother said that when Jacob opened up his new “words” device, “his face lit up. It was wonderful to see him realize he could connect now. Thank you so much for making this possible for our family,” she said.

When Ngozi Tabbs learned more than three years ago that she had multiple sclerosis (MS), the diagnosis was difficult to process. As a social worker assisting people in Washington, DC, living with mental illness and homelessness, Ngozi (pronounced “Ann-ga-zee”) was a fierce and compassionate advocate for the people she worked with, and now had to advocate for herself as she navigated a new chapter in her life.

But for Ngozi, who put herself through college for both her Bachelor’s and Master’s degrees as a single mom, “no” or “can’t” was not an option. She was determined to get the expensive equipment she needed.

When the stairs in her southern Maryland home became difficult to use and she experienced several falls, Ngozi looked for funding to install a stair lift in her home for more than two years. After the National Multiple Sclerosis Society (NMSS) pledged $1,500, Ngozi applied for an Eric Fund grant for the remainder of the more than $9,000 still needed for the stair lift. Due to extra funds raised the year prior, The Eric Fund board approved additional funding for Ngozi, with the remainder raised by the generous donors at The Eric Fund 20th Anniversary celebration in September, which Ngozi attended with her daughter.

Thanks to the generosity of The Eric Fund and its supporters in partnership with NMSS, Ngozi’s stair lift is completely funded. Her custom stair lift is being manufactured and will be installed soon. “I’m just so excited to get the equipment needed to assist me to keep me in my home,” she said.

Ammar Walcott is the older of two autistic twins who just celebrated their 18th birthday. (He is also one of six children!) His autism primary affects his communication skills resulting in the need for a high level of support to participate in social and functional activities.

Ammar attends high school as part of a certificate program, where he receives special education, occupational therapy and speech therapy services. A visual learner, he has had success in school using an iPad, where visual applications like Boardmaker Online and ChoiceBoard Creator provide the visual and auditory cues that are most effective in getting him to “use his words” to express his needs.

These programs enable Ammar to access visual communication boards that help guide his verbal output. They also provide things like checklists, visual schedules and timers, which all help promote independence with completion of functional tasks like meal prep, cleaning and working tasks.

The Eric Fund is pleased to award Ammar his own iPad (and necessary apps) for use at home so that he can have continuity from school to home, a necessary component of his path toward increased independence. His mother was effusive with her appreciation, and loved the timing – he received his iPad so near his birthday, it felt like a birthday gift. “This is a real gift for Ammar,” she said, “and the ability to communicate better with Ammar is a gift for our entire family.”

Natalie Chirinos is a 15-year-old girl who is blind and has Dandy-Walker Syndrome, a disability that affects muscle coordination. Because she has difficulty standing safely without the assistance of a physical therapist, she is home-schooled by her grandmother, whose second language is English. Because of these numerous challenges, Natalie receives around-the-clock personal care. Her Support Coordinator in Prince William County reached out to The Eric Fund to help her apply for a standing walker – a device not covered by insurance – which would help Natalie transition safely from a sitting to standing position at home, an important “first step” toward performing this task independently and voluntarily. Being able to stand on her own will also help preserve Natalie’s existing range of motion.

“The Eric Fund is providing Natalie with the first piece of technology that she has ever had that will help her have some control over her actions and do something independently,” her support coordinator said. “It may seem like nothing, but to Natalie it has a hugely positive impact on her quality of life.”

Jake Jaffe is a kind, loving 11-year-old boy who has Down syndrome and autism spectrum dis- order. The combination of these disabilities makes communication the most challenging issue that Jake confronts daily. He has challenges expressing himself verbally, and is only able to use two-word sentences to express his needs. Jake has difficulty connecting with other children because he doesn’t have the words to engage in social interactions.

Jake tried a variety of augmentative communication devices (AAC) but as his mom and speech pathologist observed him independently navigating the buttons on the Tobii Dynavox Indi, it was clear that that was the device he “clicked” with. They looked on as he became animated and excited, and interested in learning more.

The Jaffes learned about The Eric Fund by word-of-mouth from another family whose son had previously received a life-changing AAC device. They applied for partial funding, to cover the cost of the device that insurance wouldn’t cover, and were thrilled to learn that they had been chosen to receive it.

“The Eric Fund is truly a wonderful organization and we really, really appreciate all that you have done for us,” said Jake’s mom, Chiara.

“The device has made such a big difference in Jake’s life with respect to his ability to communicate with his teachers and peers. I read the [Eric Fund] newsletter as well, and it was so wonderful to see the huge impact that the funding has had on other people who needed assistive devices.”

Eight-year-old Emilia is now riding in style in Northern Virginia with a new wheelchair and car seat from The Eric Fund. Emilia, who has cerebral palsy, epilepsy, as well as physical and intellectual disabilities, outgrew her adaptive stroller to the point it was negatively impacting her positioning and posture. Emilia’s parents did not have the financial means to afford the necessary equipment for Emilia and turned to The Eric Fund for help.

The Eric Fund purchased a new wheelchair and adaptive car seat custom made for Emilia. Her parents were so grateful for the equipment for their daughter, they decided to help another family in need by donating Emilia’s old adaptive stroller that was still in good condition. With all of the necessary safety features and adaptations, Emilia is on her way to being more independent at school and at home. “It’s great,” says her father. “I can’t tell you what a difference this has made.”

One of the things Carolena Garrison enjoys most about her job as a restaurant hostess in Northern Virginia is the people – the regular customers, coworkers and managers she gets to work with each week. But now, thanks to a cutting-edge piece of technology provided by The Eric Fund, Carolena, who is legally blind, will be able to greet her family, friends, regular customers and coworkers before they even speak a word.

The Eric Fund purchased for Carolena an Orcam MyEye, a special camera device that mounts on glasses and acts as a visual aid for people with low vision. The MyEye’s facial recognition software can be programmed to recognize a number of people. When the camera sees a familiar face, it will speak the person’s identity into an earpiece Carolena wears. The MyEye also translates images and writing through the earpiece, allowing Carolena to read printed words on anything from forms to menus. Currently, Carolena requires assistance to read the restaurant’s table map to seat customers. “With the technology, I can run the floor plan and help my customers,” says Carolena. “(The MyEye) will make my job a lot easier for me. It will me give me more independence.” The Eric Fund is honored to provide this important piece of equipment to advance Carolena’s independence at home, work and in the community.

Francis Dwyer is a 27-year-old young man living with Downs Syndrome, who has already reached many milestones in his quest to live as independently in his community as he possibly can.

Although Francis had a part-time job at the time his application was submitted, he was relying heavily on a job coach to help him complete the requirements of his job, rather than working more independently. Francis, along with his mother, his job coach and his AT specialist, mapped out a list of goals and implementation strategies to make progress in three key areas of his life: work/vocational skills, activities of daily living, and community living and recreation.

His mother, Jeanne, aware of what a difference some simple apps could make in her son’s life, applied for an Eric Fund grant on her son’s behalf in hopes of securing an iPad for Francis, and the Ablelink, Endeavor 3 app and Google Calendar.

One challenge that Francis faces in his day-to-day life is remembering what tasks he needs to complete and at what time. The app is an iPad-based monitoring system that helps an individual live more independently by creating daily schedules for work and activities of daily living, daily medication reminders, all things with which Francis needs assistance. The Endeavor 3 is helping Francis create a weekly calendar with visual and auditory reminders of what he needs to accomplish. He hopes to one day use it to help him learn how to follow a recipe and cook a simple meal. Francis’s mother expressed her extreme gratitude to The Eric Fund for providing the technology that will enable her son to continue his progress on his path toward independence.

Ten-year-old Alana is one of five children in a large family that struggles month-to-month to make ends meet. Alana’s mother, Loretta, describes her as a happy, thoughtful little girl who is always smiling and loves Pokemon!

When Alana was born she was diagnosed with Opercular Syndrome (also known as Foix-Chavany Marie Syndrome), a paralysis of the facial and laryngeal muscles (among others).  As a result of this condition, Alana is unable to speak verbally. The Eric Fund awarded Alana with an iPad, that she will use as a communication device both at home and at school so that she can better interact and communicate with her family, friends and classmates.

Alana had been using an iPad paired with the Proloquo2go app (with a built-in speaker) as a communication device at school. The Eric Fund provided Alana with a special case with speakers for the iPad a couple of years ago. When the iPad broke, the school would not replace it, which severely inhibited Alana’s progress on mastering the device, let alone her ability to communicate with those around her.

It is expected that Alana will always need to rely on a speech-generating device. With her own device awarded by The Eric Fund, she will continue to build both the skills and confidence that will move her toward living a more independent life.

At 14, James Aliban has endured more than any young boy should. He has undergone two open-heart surgeries, a bone marrow transplant, and is currently in remission from leukemia. In addition, he lost his mother to cancer three years ago, leaving his father as his primary caregiver.

Due to his hearing loss in both ears and limited verbalization skills, James had been using the LAMP Words for Life app on his iPad to communicate as best he could. However, this solution was far from ideal; while the LAMP Words for Life app was helping him gain the ability to express himself, progress was slow. He needed a device dedicated solely to communication.

James was nominated for The Eric Fund grant by his speech-language pathologist, who believed that the Accent 1000 – an augmentative communication device manufactured by the Prentke Romich Company – used with the LAMP Words for Life language system would help reduce James’s frustration and support additional language learning. Using the app with the Accent 1000 would give James a way to communicate in all settings throughout his day, improve his social connections, learning opportunities, and ability to express his wants and needs.

Unfortunately, the $7,500 cost of the Accent 1000 was more than the maximum amount that The Eric Fund awards any one applicant, which put in jeopardy the possibility of getting James this life-changing technology.

Enter Prentke Romich. The Prentke Romich Company has been a leading manufacturer of augmentative communication devices for more than 50 years. The Eric Fund has worked with PRC many times over the years, to provide assistive technology to our award winners. When an Eric Fund board member reached out to them about James, they were ready and willing to help.

At its annual silent auction fundraiser on May 1, The Eric Fund featured a special “fund an item” component specifically designed to raise money to put toward the purchase of the Accent 1000 for James. The Prentke Romich Company generously donated the remaining amount, allowing the grant to go through and allowing James to have a voice.

James Aliban, his father Anastacio, and the entire board of The Eric Fund are tremendously grateful for the generosity of the Prentke Romich Company for making this grant possible! 

Six-year-old Roxie did not take kindly to being mistaken for a baby. Roxie, who lives in Maryland and has cerebral palsy, was going back and forth to school in an adaptive stroller she had outgrown that was being held together by duct tape. The stroller required another person to push Roxie, and did not permit her to move on her own.

Her single mom had tried for more than two years to get insurance to pay for a proper power wheelchair for Roxie, but unfortunately, the more than $4,300 copay for the wheelchair and all of the necessary accessories were out of reach financially. This year, Roxie finally received the wheelchair she had been waiting for, thanks to help from The Eric Fund, which paid the copay for Roxie’s new power wheelchair.

Roxie now steers her own future, whether it is down the hallway at school, at home with her mom, or out in the community. Since the new wheelchair was customized for Roxie, it will accommodate her as she grows and will assure proper positioning.  “(Roxie) has a drive and strong desire to be independent,” says her mom. “She is ready to soar… (and with her new wheelchair she will) be empowered to be more independent in her daily activities.”

Chaya is a 23-year old Washington, DC woman with cerebral palsy that affects her ability to swallow and communicate verbally. The Eric Fund purchased an iPad Pro with a case and large switch to help Chaya communicate more effectively so she no longer has to rely on facial expressions alone to share her thoughts. Chaya, who is a wheelchair user, can use the switch to operate the iPad from her wheelchair and communicate with her family, friends, caregivers, and the community. Chaya’s mother and therapists tried to help Chaya secure funding for the device several times before, but insurance and other funding streams deemed the iPad, and in turn Chaya’s ability to communicate, not “medically necessary” and she was denied the device until The Eric Fund was able to provide it. Now Chaya plans to use the iPad to communicate with her family and friends and share her thoughts and ideas.

Marshall is a 21-year-old young man from Fairfax Station, VA who has a brain injury, cerebral palsy, epilepsy and hydrocephalus. Marshall has had more than 20 brain surgeries in his young life and, due his disabilities, he needed assistance communicating more effectively, performing daily tasks and activities and additional technological support as he prepares to find a job. The Eric Fund purchased an iPad Pro with a stand and adaptive applications for Marshall to help him with these activities. iBlason, a company that makes tough cases and accessories for tablets and other devices, generously donated not one but two cases, and also sent an extended battery and cables in kind when contacted by The Eric Fund so Marshall could get the most out of his new equipment. Marshall plans to use some of the adaptive applications not only to help him become more independent, but also to help him pursue his interest in cooking which he enjoys greatly.